Bohring-Opitz awareness ribbon

Roll, Run, Swim,
Walk-a-thon

for Bohring-Opitz SyndromeFoundation, Inc.

Add the hashtag to your PayPal note so your gift counts toward our $5,000 goal.

#milesforBOS

ONE GOAL. 
EVERY ABILITY.

SUPPORT
AWARENESS  INCLUSION

ALL OF AUGUST

Raised so far

$0/ $5,000

0%

of goal

RUN

Every mile brings us closer.

WALK

Every step makes a difference.

ROLL

Every push makes progress.

SWIM

Every stroke creates strength.

GET MOVING. MAKE AN IMPACT.

Stronger Together.

Why we move

One goal. Every ability.

Bohring-Opitz Syndrome (BOS) is an ultra-rare genetic condition caused by mutations in the ASXL1 gene. Children with BOS face complex medical needs and developmental delays.

Every push, stroke, mile, and step this August helps the foundation connect families and fund research! 100% of profits go directly to the foundation.

Your miles fund:

  • Research into the ASXL1 gene
  • Annual family conferences
  • Resources for newly diagnosed families
  • Awareness campaigns for early diagnosis

The Challenge

How it works.

Pick your activity — or do all four. Log your miles all month long. Ask friends, family, and colleagues to sponsor your miles and help raise money for BOS. Share your progress with #milesforBOS.

When

All of August 2026

Aug 1 – Aug 31

Where

Anywhere you are

Your pool, your trail, your block

Goal

$5,000 raised

100% to the BOS Foundation

Sign Up

Count me in.

Tell us how you'll move!